Depending on the country in which you look at the chances of someone being born with albinism range from 1 in 3,000 to 1 in 20,000. But two girls in Kazakhstan defy all odds. They are born 12 years apart into the same family, and both are albinos.
Kamila is two and her older sister Asel is 14. They are not the only children in the family. Their brother Aldiyar is eight, but he has a more conventional Kazakh appearance.
“People are surprised that we are albino people,” said Asel. “Many people do not know what albinos are.”
Her mother, Aiman Sarkitov, was also very surprised when she saw the girl she brought into this world. But then again, even the doctors were. At first, they were even pushing a controversy, suspecting the girl had an ethnically Russian father.
Since Camila’s arrival, stunning family photos have been swirling around. When Asel was ten years old, she began a career as a model. “Genetics are not very advanced in the US when an older person is born,” she said. “It’s something that needs to be developed.”
From the very beginning, everyone was shocked and surprised. She didn’t even know where she lived. Doctors were shocked and thought she was Russian. Then she learned that her ancestors were all albinos.
According to the National Organization for Albinism and Hypopigmentation, most people with albinism have a fair complexion, therefore it is important for them to avoid the sun, which can damage the skin around the eyes. “When I go outside in the afternoon I apply sunscreen, wear clothes to protect my skin, wear headgear and use an umbrella’s.” Asel explained. “In the evening, when the sun is out, it is easier for me.”
When she was young, she attended a special school for disabled children. Now it has moved to a regular one.
“She was learning hard,” her mother said.
Of course, it is difficult for children to stare at them. But she feels good that we don’t have to restrict her. Albinos do not differ from other children in hair, eyelashes, eyes or skin color. Aiman said her son looked like his father, but he was darker than real Kazakhs.
Aldiyar didn’t have any questions about his older sister, but he started raising his eyebrows after the second one was born. “He began to say: ‘Mum, why are they like that? Why am I not like them, not like my sisters?’”
Aiman gave the answers to his son and then he realizes that people are looking at the girls, and even begins to boast, proudly telling people about his unique sisters.”